We are excited to announce the launch of our newest ebook:
The Top 10 Tests for PANS, PANDAS and Autoimmune Encephalitis
When your child exhibits symptoms such as irritability, aggression, OCD, Tics, eating restrictions or urinary accidents all we want to do as parents is help them feel better and smile again. Our parental ‘red flags’ go up and alarm bells go off, when these symptoms happen abruptly and we are experiencing a child who is unrecognizable from the child we have been raising days, weeks or months before. These symptoms can point to a collection of conditions called PANS, PANDAS and Autoimmune Encephalitis or brains on fire for our loved one. PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections and PANS stands for Pediatric Acute-onset Neuropsychiatric Syndrome. Autoimmune Encephalitis is abbreviated AE
In this ebook we help a parents take into account the underlying biochemistry of the body and laboratory tests which may give clues as to why our child is feeling and acting the way they are. This book will empower parents to partner with their child’s physician to look deeper into the root causes of their child’s challenges, leading them to actionable steps they can make to improve their child’s quality of life and their own.
Kristi Wees is a chemist and a medical advocate who takes the seemingly complicated world of laboratory blood testing for a grouping of conditions called PANS, PANDAS and Autoimmune Encephalitis and describes these tests in a way that parents can understand, giving them the information they need to have an educated conversation with their child’s pediatrician.
A little history about why we wrote this book:
This ebook has been a few years in the making, starting from the 6 moms who approached us in the fall of 2016 (separate from one another), asking for our medical advocacy assistance in navigating the medical system in Pittsburgh, Pennsylvania for their children. Fast forward 6 months later and the group had organically( by word of mouth) grown to well over 25-30 local moms with similar concerns and need for medical help in properly diagnosing and treating their children with symptoms of these 3 conditions. Looking back, we didn’t really understand exactly why we were taking a deep dive into the science and laboratory methods for understanding these conditions that were little known to us just a few years prior.
It wasn’t until the fall of 2019, that God showed us exactly why he had taken us down that path. And for that reason, this ebook is dedicated to EBW. Thank you buddy for teaching us all so much more about these topics. We love you and will always be here to cheer you on!
This book is the compilation of much of what we have learned on these many journeys. We hope you find it helpful for your family or a family you care deeply about. It is written in an easy to understand format for families to dig into but it also contains numerous medical and scientific links that give it the ability to be shared with pediatricians, specialists and primary care providers, also.
I’m so happy to see this! May it bless many families and allow them to find hope and recovery for their children!